On Tuesday 18th January we celebrated International AHC Day at Holly Grove by making lots of noise. This is the day that Alternating Hemiplegia of Childhood (AHC) was discovered and the day gives us a chance to celebrate the new accomplishments and look forward to the new goals set. AHC is an extremely rare condition and has been labelled as “the most complex condition known to man”. The neurological disorder has life limiting effects for children and can cause painful paralysis for long periods of time.
One of our children in school is diagnosed with AHC and he wanted to help raise awareness and raise some money to help researchers with their studies in order to help these children become pain free.
Currently Great Ormond Street Hospital help to treat the side effects or AHC and are working hard to develop their understanding of the causes. All pupils wore bright colours on Tuesday and we asked for a donation of 50p. We will let you know how much we have raised once the money has been counted.